Resources regarding disability, pregnancy, and parenting

Parenting With a Disability Network, Centre for Independent Living in Toronto, Toronto, Ontario, Canada: A cross-disability network for parents and prospective parents with disabilities; Facebook group

The Parenting Enhancement Program, Surrey Place, Toronto, Ontario, Canada: Skill training and support program for parents with intellectual/developmental disabilities

Accessible Care Pregnancy Clinic, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada: A specialized clinic that provides care for women, trans, and non-binary people with physical disabilities who are pregnant or are contemplating a pregnancy

Guideline No. 416: Labour, Delivery, and Postpartum Care for People with Physical Disabilities, SOGC Clinical Practice Guidelines (Berndl et al., 2021)

The National Research Center for Parents with Disabilities, The Heller School for Social Policy and Management, Brandeis University, USA: Research and training and technical assistance to improve the lives of parents with disabilities and their families; Twitter handle: @NatRCPD

Parents Plus Clinic/Clinique Parents Plus, Montreal, Quebec, Canada: Occupational therapist support program for parents and prospective parents with physical disabilities with children up to age 2

Mothering and Disability Fact Sheet, Prepared by Ayla Visser, University of Guelph, Guelph, Ontario, Canada (2015)

Pregnancy and Spinal Cord Injury: An information booklet for women with SCI, Prepared by Vancouver Coastal Health’s Sexual Health Rehabilitation Service, BC Women’s Hospital and Health Centre’s Maternal Fetal Medicine Service, Rick Hansen Institute, and Spinal Cord Injury BC, Vancouver, British Columbia, Canada (2015)

Caring for Pregnant and New Parents with Physical Disabilities, eLearning Course hosted by the BC Provincial Health Services Authority, Developed by Karen Hodge

Childbirth Preparation and Support Tool, Best Start/Health Nexus, Ontario, Canada: A tool for health care providers to use with people who may require extra support during pregnancy and birth, such as those with intellectual/developmental disabilities (2021)

Spinal Cord Injury and Parenting: A Swedish project aimed at increasing knowledge about fertility, pregnancy, childbirth, and parenting for people with spinal cord injuries

Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients, Canadian Arthritis Patient Alliance, Ottawa, Ontario, Canada (2017)

Maternity Rolls: Pregnancy, Childbirth and Disability, By Heather Kuttai, Fernwood Publishing (2010)

Eliminating Inequities for Women With Disabilities: An Agenda for Health and Wellness, Edited by S.E. Miles-Cohen and C. Signore, American Psychological Association Press (2016)

Mamas Facing Forward: Resources, support, and encouragement for moms and mom-to-be living with chronic illnesses (e.g., rheumatoid arthritis)

Center for Research on Women with Disabilities, Baylor College of Medicine, Houston, Texas, USA: Center that promotes, develops, and disseminates information to improve the health and expand the life choices of women with disabilities

Reproductive Health in Women with Intellectual and Developmental Disabilities in Ontario: Implications for Policy and Practice, ICES Report (Brown et al., 2019)

The Together Project: Supporting the delivery of good practice in maternity services for parents with learning disabilities: A UK-based study, resources for parents with intellectual/developmental disabilities (Note: In the UK they often use the language of learning disabilities whereas in Canada we tend to use the language of intellectual/developmental disabilities)

A Perinatal Health Framework for Women with Physical Disabilities, Disability & Health Journal (Mitra et al., 2015)

June 1, 2020: Resources regarding to COVID-19, Disability, Pregnancy, and Parenting (mostly Toronto and Ontario-based)

See Publications for more