Resources

Resources regarding disability, pregnancy, and parenting

Parenting With a Disability Network, Centre for Independent Living in Toronto, Toronto, Ontario, Canada (cross-disability network for parents and prospective parents with disabilities; Facebook: https://www.facebook.com/groups/1351851451648661/)

The Parenting Enhancement Program, Surrey Place, Toronto, Ontario, Canada (parent skill training and support to parents with developmental disabilities)

Accessible Care Pregnancy Clinic, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada (a specialized clinic that provides care for women, trans and non-binary people with physical disabilities who are pregnant or are contemplating a pregnancy)

The National Research Center for Parents with Disabilities, The Heller School for Social Policy and Management, Brandeis University, USA (research and training and technical assistance to improve the lives of parents with disabilities and their families; Twitter: @NatRCPD)

Mothering and Disability Fact Sheet, Prepared by Ayla Visser, University of Guelph, Guelph, Ontario, Canada (2015)

Pregnancy and Spinal Cord Injury: An information booklet for women with SCI, Prepared by Vancouver Coastal Health’s Sexual Health Rehabilitation Service, BC Women’s Hospital and Health Centre’s Maternal Fetal Medicine Service, Rick Hansen Institute, and Spinal Cord Injury BC, Vancouver, British Columbia, Canada (2015)

Spinal Cord Injury and Parenting (a Swedish project aimed at increasing knowledge about fertility, pregnancy, childbirth and parenting for people with spinal cord injuries)

Pregnancy and Parenting with Arthritis: A Resource for Patients by Patients, Canadian Arthritis Patient Alliance, Ottawa, Ontario, Canada (2017)

Maternity Rolls: Pregnancy, Childbirth and Disability, By Heather Kuttai, Fernwood Publishing (2010)

Eliminating Inequities for Women With Disabilities: An Agenda for Health and Wellness, Edited by S.E. Miles-Cohen and C. Signore, American Psychological Association Press (2016)

Mamas Facing Forward (resources, support, and encouragement for moms and mom-to-be living with chronic illnesses, e.g., rheumatoid arthritis)

Center for Research on Women with Disabilities, Baylor College of Medicine, Houston, Texas, USA (promotes, develops, and disseminates information to improve the health and expand the life choices of women with disabilities)

Reproductive Health in Women with Intellectual and Developmental Disabilities in Ontario: Implications for Policy and Practice (ICES Report, Brown et al., 2019)

The Together Project: Supporting the delivery of good practice in maternity services for parents with learning disabilities (UK-based study, resources for parents) Note: In the UK they often use the language of learning disabilities whereas in Canada we tend to use the language of intellectual/developmental disabilities

A Perinatal Health Framework for Women with Physical Disabilities (Disability & Health Journal, Mitra et al., 2015)

June 1, 2020: Resources regarding to COVID-19, Disability, Pregnancy, and Parenting (mostly Toronto and Ontario-based)

See Publications for more